Get Ready for NORD’s Patient and Family Forum, Set for June 26-27

Abstract on How Avacopan Affects Kidney Function Makes Top 10 List

Treatment with ChemoCentryx’s investigational therapy avacopan can improve kidney function in people with ANCA-associated vasculitis to a greater extent than steroids, especially among individuals with advanced kidney disease, clinical trial data show. The data were presented at the annual meeting of the European Renal Association –…

After 8 Years of Remission, I No Longer Hate Math

I wish I could go back in time and tell my middle-school self that one day, math would be a positive thing. Algebra, trigonometry, and even physics felt alien to me. No matter how I tried, my brain did not function in a way that allowed me to conceptualize anything…

Finding Peace Amid the Contradictions of Chronic Illness

Receiving a chronic illness diagnosis can be frustrating and full of apparent dichotomies. After years of searching for answers, a diagnosis is a welcome end, but it also signals a beginning.  The doctors pronounced my disease to be granulomatosis with polyangiitis (called Wegener’s granulomatosis when I first…

V-RED Awards Honor 3 Physicians for Early Vasculitis Diagnoses

The Vasculitis Foundation‘s Excellence in Diagnostics (V-RED) award program — which has grown into an awareness campaign — is this year honoring an endocrinologist, a primary care physician, and a critical care doctor. Launched in 2014, the V-RED awards seek to recognize medical providers globally who made critical…

Most Adhered to Treatment During COVID-19 Lockdowns

About one-third of patients with ANCA-associated vasculitis (AAV) or other forms of vasculitis postponed at least one of their healthcare visits during the first months of the COVID-19 pandemic, but most continued adhering to treatment, a survey reveals. Moreover, patients with vasculitis are complying with advice to stay at…