Suzanne DePaolis speaks at vasculitis conferences and is on the board of the Vasculitis Foundation. Diagnosed at age 40 with eosinophilic granulomatosis with polyangiitis, she is passionate about educating and advocating for patients living with vasculitis. She lives among the redwoods in California and enjoys spending time with her horses, chickens, and other transitory wildlife. Suzanne hopes that her column, “Veni, Vidi, Vascie,” will inspire readers to realize that living with a rare illness does not end one’s dreams; rather, it makes those dreams evolve.
I’ve had eosinophilic granulomatosis with polyangiitis (EGPA), a type of ANCA vasculitis, for 17 years. After my diagnosis, I had to change my life and reinvent myself. At the same time, I was grieving…
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