Truth Be Told — Sarah Jones

No one teaches you how to be sick. There is no handbook for how to gracefully give up what you once perceived as power over your life and body in order to find peace…

As I look back on Vasculitis Awareness Month in May, I find myself grappling with a complex wave of emotions. On one hand, there’s undeniable excitement and a spark of validation. For once, the…

Spoiler alert: I think, in the end, only the person living with a chronic disease can soothe themselves. The other day, my wife, Pam, and I had one of our car conversations. You know…

I’ve come to realize that there is no single way to live with a chronic illness like ANCA vasculitis. There are countless realities and processes people use to navigate such a life-altering diagnosis.

Sometimes I think back to when I first got sick and realized that not only was my chronic illness not going away, but I could no longer do my job. I was running a…

What is it with us humans? It is a curious phenomenon that we generally deem situations, interactions, gifts, successes, or help from others as valuable only if they’re epic — dismissing the baby steps,…

We’ve all heard the phrase “what a difference a day makes.” That couldn’t be more accurate for someone with vasculitis or any other chronic disease. Some days can feel as if they last for…

It’s hard not to compare ourselves with other people living with ANCA vasculitis who have benefited from medications and treatments. Comparing is human nature — and the cause of much suffering. It’s particularly…

This February marked four years since the day my world — our world — changed forever. For the previous 11 months, my wife, Pam Squires, and I had been stuck in a relentless loop,…