News

September 16, 2020September 16, 2020

20S-proteasome May Be Useful Biomarker of AAV Disease Activity

News

The 20S-proteasome — the core of an enzyme complex responsible for eliminating unnecessary or damaged proteins in cells — may be a useful biomarker of disease activity in people ... Read more

September 10, 2020September 10, 2020

AAV Carries High Healthcare Costs, Italian Study Finds

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ANCA-associated vasculitis (AAV) carries high healthcare costs for therapies and hospitalizations to treat the disease itself and related infections, a study in Italy has found. The study, “Healthcare and ... Read more

September 3, 2020September 3, 2020

Muscle Biopsies Could Be Useful in AAV Diagnosis, Study Asserts

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Muscle biopsies could be used to diagnose ANCA-associated vasculitis (AAV), a new study indicates. The finding suggests that such biopsies are most informative in females or in people with ... Read more

August 31, 2020August 31, 2020

Organ Involvement in EGPA Patients Impacted by ANCA Status, Review Finds

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The presence or absence of ANCA antibodies appears to influence which organs are affected by eosinophilic granulomatosis with polyangiitis (EGPA), a rarer subtype of ANCA-associated vasculitis, a recent review ... Read more

August 27, 2020August 27, 2020

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

News, syndicated

Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed at streamlining the search for new medicines for rare disorders and incorporating more patient ... Read more

August 17, 2020August 17, 2020

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

News, syndicated

The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. ... Read more

August 17, 2020August 17, 2020

Extracellular Vesicles of Neutrophils May Be Blood Biomarkers for AAV

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Extracellular vesicles, or the tiny membrane-bound particles that are released from cells, could be used as a blood biomarker of disease activity in people with ANCA-associated vasculitis (AAV), a new ... Read more

August 13, 2020August 13, 2020

Complement System Overactive in AAV Patients With Active Disease, Study Finds

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The complement system, a part of the immune system, is overactive in people with active ANCA-associated vasculitis (AAV), but achieving remission appears to lower most of its components to ... Read more

August 11, 2020August 11, 2020

New Streaming Channel Showcases Rare Disease Films

News, syndicated

When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a new way to bring the ... Read more

August 6, 2020August 6, 2020

Plasma Exchange Does Not Improve Survival of Severe AAV Patients, Study Suggests

News

Plasma exchange does not prolong the survival of patients with severe ANCA-associated vasculitis connected with diffuse alveolar hemorrhage, a potentially life-threatening condition in which blood starts to build up in ... Read more

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