The Light at the End of 2020

Sandra Ross avatar

by Sandra Ross |

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covid-19 vaccine

Here it is, the end of 2020, and what a year it has been. After so many dark and worrisome days in this pandemic, it is quite a relief to see a light at the end of the tunnel. I am overjoyed that COVID-19 vaccinations have begun in the U.S.

I have been self-quarantining since mid-March, mostly only going out for doctors’ appointments. In July, I tested the waters to see if I could handle going out in public. I was very disappointed to find that there were far too many people not wearing masks properly, or at all, and not social distancing. So, I have not ventured out since then.

The darkness for me reached its peak in June. I was horribly depressed. My employer was cutting my position, so I was going to lose my job at the end of the year. I had just lost my sweet cat, Leo, who I’d had since 2004. I was in a rut, basically only eating, working (remotely, thankfully), and sleeping.

Thankfully, I slapped myself out of it — figuratively, of course — and started making some big changes. I started dieting and exercising (I’ve lost 35 pounds), I got more involved in online activities and chat groups so I could be social, and I updated my résumé and set out to find a new job (I found one in October). I also was given the opportunity to write this column.

Then, to top all of that off, I saw the news of a COVID-19 vaccine. Not only that it exists, but also that it is a vaccine I can take. Due to my condition, granulomatosis with polyangiitis, I cannot take a live vaccine. None of the COVID-19 vaccines being developed are live, and I am thrilled about that.

I know I am not first in line by any means, and that is just fine with me. I work remotely, and after making those big changes in my life this year, my mental health is fine again. Healthcare workers and other essential personnel need to be first, with good reason. What’s another couple of months or more? I will gladly wait. Just knowing that there is a vaccine will keep me going.

I do look forward to the day when I can go out shopping again or even dine in at a restaurant. That seems so trivial in light of the circumstances these days, but I really do miss doing that. I am relieved to know that there will be a way for me to protect myself that is not as dependent on others.

I know I have been very lucky during this pandemic, and I hope to continue to be so until we win the war against COVID-19. It is devastating to know that this vaccine is too late for so many people. My heart breaks every day for the lives lost, and the lives forever impacted by tragedy or the long-term effects of the virus.

I am glad 2020 is wrapping up with some positive news. We all need it, and I am grateful for it. I hope the new year brings new hope. Cheers to 2021!


Note: ANCA Vasculitis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of ANCA Vasculitis News or its parent company, BioNews, and are intended to spark discussion about issues pertaining to ANCA vasculitis.


Lori Drozd avatar

Lori Drozd

Thanks Sandra for uplifting article. Same diagnosis since 2006 with other issues. Truly blessed to have Cleveland clinic for treatment.I only wish cdc and health department would vaccinate the high risk compromised patients asap. Quarantined grandma, mom and wife feeling incarcerated.

Marie Sookra avatar

Marie Sookra

Thanks for sharing such positive news. I was diagnosed with Wegener's in 2009.
I get very ill with the flu shot and I'm a bit concerned about my reaction to the vaccine.



Have you been vaccinated yet? If so, please share your experience. My mother who was diagnosed in 2019 is getting the first dose in March and I am very concerned.

Sandra Ross avatar

Sandra Ross

Hello. Unfortunately, I have not been vaccinated yet. I plan on writing about it when it happens, but it will not be before March.

Helen Sjoberg avatar

Helen Sjoberg

I would really appreciate if you could also cover some general information and recommendation for MPA Vasculitis patients who are NOT on immunosuppressive drugs (got off Rituximab in 2018. Before that I've had 2 relapses). My concern with a vaccine is that - my immune system being very sensitive and that it easily reacts to anything, "normal things" as being "foreign" - my immune system will react to the vaccine as being "foreign" and that my immune system will go haywire and attack not only my kidneys but also other organs. I do realize that the virus could potentially be equally dangerous for me (actually causing autoimmune response in the body), but with no information so far on those of us who are NOT on immunossuppressive medication it feels like I'm stuck between a rock and a hard place... or is there now data and information enough to generally recommend NON- immunosuppressive MPA patients to get the vaccine and in that case which one is the preferred - Pfizer or Astra Seneca type?

Thanks very much! Kind regards, Helen

Michael Black avatar

Michael Black

I realize that everyone is jockeying for the front of the vaccine line, but but going just by oldest leaves out a lot.

My GPA kicked in almost exactly 2 years ago (I was 59), I never got back to normal before the Pandemic hit. We may have a rare disease, but I gather lots of people have problems with their immune system. The expensive drug to keep it contained apparently makes me more vulnerable.

If I can't get vaccinated in early May, it won't happen till November, a window when the drug won't cancel the vaccine

Michael Smith avatar

Michael Smith

Did you get the vaccine?? I have GPA and in my early 70's and have been told I can take the vaccine, but am hesitant. Have you taken the vaccine and if so did you have side effects?

Sandra Ross avatar

Sandra Ross

Hello! I just got my first dose, and the only side effect I had was a sore arm. I got the Pfizer vaccine, and I will get the second dose in three weeks.

michael austin avatar

michael austin


Hope everyone doing well.
Diagnosed WG in 2006 and no problems since.

I did get first dose of the Pfizer vaccine and no problems.


Michael Hagans avatar

Michael Hagans

Hello.. I just made an appointment to get my first dose of Pfizer vaccine on wed.march 31st. While I was researching weather or not I made a good decision to get the vaccine, I came across your column. I too was diagnosed with Wegners at age 19. I was in my first year of college. I took Cytoxan for 2 and 1/2 years also. I read all of your columns, and I can relate to most everything you wrote. I have never spoken or corresponded to another person who shares this condition, but felt compelled to write to you. I was diagnosed in 1981... forty years ago. Despite the challenges of the past year, life is pretty good as I head toward 60. I wish the same for you as you head for 60 and beyond.

Sandra Ross avatar

Sandra Ross

I have never encountered anyone who went through the exact same thing as I did. I am very glad to hear that life is going well for you as you near 60. Knowing that certainly does help me and my outlook with this condition. Thank you!

Had I known... avatar

Had I known...

I really appreciate this page. Thank you for all of the sharing. I was diagnosed 2018 at age 35. I am still actively on rituximab every 6 months. I like most on this blog am waiting for the COVID-19 my issue is I didn't do much research before my last infusion in Feb 2021. I found out after the fact that If I was to get the vaccine I have to wait until the end of my dosing cycle (which will be July. August time frame) so crappy being I got the call to get scheduled and had to decline being the Vaccine would not be effective due to the recent infusion. I am sharing this information for anyone in the same boat. Do you research and talk to your doctor if you want the vaccine but are in a series or infusions.

Hella Dresdner avatar

Hella Dresdner

Just for information.
I have been in remission since 2006 without meds. I am extremely lucky. I received the first dose of the pfizer vaccine two weeks ago.
It set off a string of side effects and I am now concerned about the second dose.
The damage from GPA left me with Trigeminal Neuralgia and some hearing loss. Stopped my 20 year career as a Pilot. My TN had been managed without meds since 2012.
Pfizer doze one side effects:
Slight fever
Body aches especially lower back.
Neurological pain in one leg.
Several strong attacks of TN day 2.
Moderate to severe fatique.

BUT! I am almost back to normal and the TN was only bad for one day. I believe getting the virus would have brought me out of remission or would have killed me. So I am thankful for the vaccine.
Now I am slightly concerned about the second dose ...

Stay safe!


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