News Pregnant Women Who Develop AAV May Safely Be Treated with Rituxan, Case Report Suggests

News Leptin Deficiency Can Lead to Development of AAV, Case Study Suggests

News Defense Processes of Neutrophils Linked to Active AAV Disease, Study Finds

News Antibiotics Can Help AAV Patients on Rituxan Lower Risk of Severe Infections, Study Finds

News InflaRx Set to Launch Phase 2 Trial Testing IFX-1 in AAV Patients Following FDA Approval

News Researchers Need to Better Understand Differences in Eosinophilic Granulomatosis with Polyangiitis Symptoms in Children and Adults, Study Suggests

News New Subtype of ANCA-associated Vasculitis Proposed by Researchers in China

News Narrowing of Respiratory Airways a Common, Serious Complication of GPA, Study Shows

News GPA Often Affects Eye, Requiring Care from Ophthalmologist, Study Suggests

News Interstitial Lung Disease May Trigger Microscopic Polyangiitis in Some Patients, Case Report Suggests

News Immunosuppressants Linked to Reduced Risk of Relapses in Subset of AAV Patients

News Study Reports First Case of GPA Involving Entire Gastrointestinal Tract

News Immunosuppressive Treatment of ANCA Vasculitis May Increase Patients’ Risk of Late-onset Pneumonia

News Microscopic Polyangiitis Can Develop After Pregnancy, Case Report Suggests

News Ultrasounds May Help Predict Artery Damage, Risk of Heart Problems in GPA Patients, Study Shows

News Thyroid Medication for Graves’ Disease Caused AAV Symptoms in Ear, Case Study Reports

News Men with AAV More Likely than Women to Develop End-stage Renal Disease, Study Finds

News Rare Case of Tapazole Thyroid Medicine Triggered AAV in Patient, Report Shows

News US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases

News Blood Levels of ANCA Antibodies May Predict Relapse in AAV Patients, Study Finds

News #ERDC2018 – When Treating Rare Disease Patients, Don’t Overlook Quality of Life, Panel Urges

News Thyroid Medication Caused AAV in Patient with Graves’ Disease, Case Study Reports

News Protein Myeloperoxidase May Lead to Worse Outcomes in AAV Patients

News Kidney Transplant Improves Survival of GPA Patients with Advanced Renal Disease, Study Finds

News Interstitial Lung Disease May Develop in Patients with Any AAV Subtype, Study Suggests

News New Cases of AAV with Kidney Damage Reported in Hypertension Patients Using Hydralazine

News ‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35

News #ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say

News Cytokine Levels Can Distinguish Autoantibody Types in AAV Patients, Study Shows

News Rituxan Better at Maintaining Long-term Remission in AAV Patients in Clinical Trial

News Kidney Function in Patients with Severe Renal Disease May Be Helped by Longer Immunosuppressive Use, Study Suggests

News New Patient-reported Outcomes Questionnaire for AAV Reliable and Sensitive, Study Says

News Blood Cleaning Method Lowers Hospital Deaths in AAV Patients with Pulmonary Bleeding, Study Finds

News ANCA Vasculitis May Develop in Patients Negative for ANCA Antibodies, Case Report Contends

News #ECRD2018 – Patient Access and Collaboration Focus of Eurordis Meeting May 10-12

News Vasculitis Foundation Awards $160,000 for 3 New Research Projects

News Some Patients with Hydralazine-related AAV Develop Advanced Kidney Disease, Study Finds

News Treatment for Severe Acne May in Rare Cases Cause AAV, Patient Study Shows

News Low Immune Protein Levels Predict Worse ANCA-associated Vasculitis Survival, Study Finds

News Avacopan Safer, More Effective than Standard Therapy in AAV Patients, Phase 2 Trials Show

News Azathioprine Therapy in AAV Patients Not Affected by TPMT Enzyme Activity, Study Shows

News NIH Agency Pioneers Collaborative Research into Rare Diseases

News Faulty Immune System Component in AAV Leads to Neutrophil Activation, Kidney Damage, Study Shows

News Study Links White Blood Cell Precursors to Vasculitis Severity at Diagnosis

News FDA Approves AESKU’s Automated Diagnostic Tests for ANCA-associated Vasculitis

News Rare Mutations in ATT Protein May Lead to Development of AAV, Case Report Suggests

News AAV Patients Have Greater Risk for Cardiovascular Disease, Venous Thromboembolism, Study Finds

News Rituxan Can in Rare Cases Lead to Very Low Platelet Levels in ANCA Vasculitis Patients, Study Says

News Patients with AAV Have Higher Prevalence of Thyroid Disease, Study Finds

News Blistering Skin Rash May Be Eosinophilic Granulomatosis with Polyangiitis

News Chest Symptoms, Disease Activity at Diagnosis May Predict Risk of Hospital Infections in AAV, Study Suggests

News Case Report Stresses Challenges of Diagnosing GPA Manifesting as Ear Pain, Facial Paralysis

News Distinct ANCA Autoantibodies Predict Different Organ Involvement, Outcomes in AAV, Study Shows

News Overall Cancer Risk Not Increased in ANCA Glomerulonephritis Patients, Study Suggests

News Genome Sequencing and Its Clinical Potential Focus of NYC Rare Disease Day Event

News Early Diagnosis Can Improve Survival in GPA Patients, Study Suggests

News ‘A Disease May Be Rare, Hope Should Never Be,’ Says Boy with SMARD at Connecticut Rare Disease Day Event

News GPA Patients with Ear, Nose, and Throat Symptoms Have Fewer Kidney Problems, Better Survival Rates, Study Finds

News Rare Disease Groups Welcome FDA’s Embrace of ‘Real World’ Data in Clinical Trials

News Protein Levels in Blood and Urine Can Signal That AAV Is Affecting Kidneys, Study Finds

News US Lawmakers Urge Bipartisan Support for Rare Disease Research, Patients’ Needs

News Blood Cell Size May Help Predict Poor Granulomatosis with Polyangiitis Outcomes, Study Finds

News UK Report Highlights Experiences, Needs of People with Autoimmune Rheumatic Diseases

News Common Antibiotic May Cause ANCA Vasculitis in the Skin, Case Report Shows

News Retrophin, Horizon Donate $3M Each to Rare Disease Institute at Children’s National

News BioNews to Cover 3 Rare Disease Day Events, Including NIH Conference

News Long-term Rituxan Combo Therapy Improves Outcomes of Patients with Renal AAV, Study Shows

News Difficulties in Diagnosing ANCA Vasculitis in Young Patient Detailed in Case Report

News Patient Advocacy Groups Worldwide Plan Events to Mark Rare Disease Day, Feb. 28

News AAV Patients in Japan on Low Daily Prednisone Doses as Maintenance Therapy Seen as More Likely to Relapse

News Symptoms of Sweet’s Syndrome May Include Higher Levels of ANCA Autobodies, Case Report Suggests

News Shorter Glucocorticoid Treatment Combined with Rituxan Could Benefit Some AAV Patients, Study Says

News A Case of Blood Vessel Inflammation Going from ANCA Antibody-negative to Positive

News Rare Disease Groups, Patients Differ on ‘Right to Try’ Bill Before US Congress

News Questionnaire Created to Assess Patient-reported Impact of AAV on Quality of Life

News Persistent Blood in Urine May Be Sign of Kidney Disease Returning, Study Finds

News Rare Inflammatory Disorder of Brain Meninges Linked to MPO-positive AAV

News NORD Fundraiser Sets 7,000-Mile ‘Bike, Run or Walk’ Goal for 7,000 Rare Diseases

News Study Reveals Why Autoantibodies ‘Disappear’ in Lesions of MPO-positive AAV Patients

News Japanese Case Study Links Patient’s Microscopic Polyangiitis to Silica Dust

News GPA Patient with Lung Lesions Worsened After Immunosuppressive Treatment, Japanese Study Reports

News Patient with GPA and Ocular Symptoms Successfully Treated with Rituximab in Case Report

News Rituxan May Be Effective in Treating Refractory AAV Patients, Study Says

News Researchers Identify New Molecule That Leads to Kidney Damage in AAV Patients

News ANCA May Affect Large as Well as Small Blood Vessels, Case Studies Show

News High-dose Glucocorticoid Pulses May Improve Severe Kidney Condition of AAV Patients, Study Indicates

News Early Diagnosis of AAV Symptoms Decreases Risk of Renal Damage, Mortality

News EMA Accepts Conditional Application for ANCA Treatment Avacopan

News Rituxan Effective in Keeping ANCA Vasculitis at Bay, Saudi Study Shows

News Many ANCA-associated Vasculitis Patients with a Particular Antibody Have Bronchiectasis, Study Shows

News IV Cyclophosphamide Better Than Oral Treatment for AAV Patients, Study Suggests

News AAV Patients Exhibit Heart Abnormalities Near Time of Diagnosis, Study Shows

News Trial to Explore If Low-dose Glucocorticoids May Improve Safety of ANCA Vasculitis Treatment

News GSK’s Nucala Approved by FDA as Add-on Therapy for EGPA Patients

News Blood in Urine in AAV Patients in Remission May Reflect Renal Damage, Study Finds

News Severity of Anemia Linked to Poorer Outcomes in Patients with ANCA-Associated Renal Vasculitis

News Adding Azathioprine to Glucocorticoid Regimen Doesn’t Improve SNV Remission Rates, Study Finds

News Winter Rise in Renal AAV Cases, Possibly Due to Infections, Reported in Study

News ANCA Vasculitis Treatment Research Advancing, Mayo Researchers Say

News Tailored Rituxan Treatment Offers No Added Benefit in Relapse Rates to AAV Patients, Phase 3 Trial Finds