Updates

June 24, 2019
Study: Rituxan Reduces Disease Activity in EGPA, But Relapses Stay High

Treatment with Rituxan (rituximab) had some efficacy in eosinophilic granulomatosis with polyangiitis patients, leading to a reduction in glucocorticoid requirement, but asthma and ear, ... Read more
June 21, 2019June 20, 2019
Eurordis Unveils Integrated-care Initiative for Rare Disease Patients

Europe’s umbrella organization for 800 rare disease associations has developed a sweeping initiative to help the continent’s 30 million rare disease patients and their ... Read more
June 20, 2019
Rituxan Is Cost-effective for ANCA-associated Vasculitis, Study Says

In a new study comparing Rituxan (rituximab) and azathioprine for the treatment of ANCA-associated vasculitis (AAV), rituximab was found to be a cost-effective ... Read more
June 19, 2019June 17, 2019
‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

People with rare diseases know that the right government policies can make a big difference in the quality of their own lives, and those ... Read more
June 18, 2019
Proteins Linked to Neutrophil Clearance Altered in GPA Patients, Study Finds

The neutrophils of patients with granulomatosis with polyangiitis (GPA) have altered levels of proteins involved in neutrophil clearance, which may contribute to the blood ... Read more

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News

FDA Grants Priority Review to Rituxan Plus Glucocorticoids for Children with GPA and MPA
June 17, 2019
The U.S. Food and Drug Administration (FDA) has granted Priority Review to Rituxan (rituximab) in ...
News

FDA Approves Autoinjector and Pre-filled Syringe for Self-Administration of Nucala
June 13, 2019June 13, 2019
People who live in the U.S. and have eosinophilic granulomatosis with polyangiitis (EGPA) now ...
News

High Levels of MPO-ANCA Antibodies Linked to Poor Kidney Function in Long-term, Study Says
June 11, 2019
People with ANCA-associated vasculitis with high levels of myeloperoxidase (MPO) antibodies at diagnosis are ...
News

AAV Patients More Likely to Develop Thyroid Disease, Korean Study Finds
June 6, 2019June 6, 2019
ANCA-associated vasculitis patients in Korea have a high prevalence of thyroid dysfunction, with the ...
News

Plasma Exchange Effective for AAV Patients with Severe Renal Damage, Study Reports
June 4, 2019
Treatment using plasma exchange can help ANCA-associated vasculitis patients with severe renal damage become ...
News

BVAS and FFS Both Useful Tools for Predicting AAV Prognosis and Choosing Therapy, Study Says
June 3, 2019
The Birmingham Vasculitis Activity Score (BVAS) and the Five Factors Score (FFS) are both ...

Rituxan-Soliris Combo May Replace Glucocorticoids in Treatment of Severe AAV, Case Report Suggests
May 30, 2019May 30, 2019
A combination of Rituxan (rituximab) and Soliris (eculizumab) may be used to replace glucocorticoids ...
Blood in Urine Linked to Higher Risk of Kidney Disease Relapse in AAV Patients, Study Finds
May 28, 2019May 28, 2019
The presence of blood in the urine is associated with a four times higher ...
Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries
May 27, 2019May 24, 2019
Urinary Gremlin Protein Levels a Potential Biomarker for ANCA-associated Renal Vasculitis, Study Finds
May 23, 2019
First Patient Dosed in European Trial Testing IFX-1 Investigational Therapy, InflaRx Announces
May 21, 2019
Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns
May 15, 2019

ChemoCentryx on Track to Present Topline Data From its Ongoing ADVOCATE Phase 3 Trial on Avacopan
May 14, 2019
ChemoCentryx remains on track to report topline results later this year from its ongoing ...
Cerebral Small Vessel Disease Can Be Detected Before Diagnosis of MPO-AAV, Study Suggests
May 9, 2019
Stopping Immunosuppressants May Be OK for Some ANCA Vasculitis Patients, Study Suggests
May 7, 2019
Tumors in Thymus May Cause ANCA-associated Vasculitis, Case Report Suggests
May 2, 2019

Lupus Nephritis Patients with ANCA Antibodies Have More Aggressive Kidney Disease, Case Report Suggests
April 30, 2019April 30, 2019
Lupus nephritis patients positive for ANCA antibodies show mixed symptoms of systemic lupus erythematosus and ANCA-associated vasculitis, ...
Nonprofit Group Works to Raise Rare Disease Awareness in India
April 25, 2019April 25, 2019
Expanded ANCA Testing May Improve AAV Diagnosis, Classification, Study Says
April 23, 2019

News

2 Molecules May Serve as Potential Biomarkers for Disease Activity in EGPA Patients, Study Suggests
April 22, 2019
The levels of two molecules in the blood — eosinophil cationic protein (ECP) and ...
News

Rituxan Deemed Safe, Effective for Refractory or Relapsing GPA Patients
April 18, 2019
Genentech‘s Rituxan (rituximab) is safe and effective to induce and maintain remission in patients with ...
News

Heart Valve Damage Might Be Cause of Breathing Difficulties in ANCA-Associated Vasculitis, Case Report Says
April 16, 2019
While breathing difficulties in ANCA-associated vasculitis patients are often a symptom of worsening vasculitis in their ...
News

Donor Antibodies Given Intravenously May Treat ANCA Vasculitis, Early Study Reports
April 15, 2019April 15, 2019
Intravenous immunoglobulin therapy – which essentially consists on pooled antibodies from a thousand or ...
News

Anti-NET Antibodies May Prevent Normal Degradation of Antimicrobial Traps in MPA Patients, Study Says
April 11, 2019
Some patients with microscopic polyangiitis (MPA) produce antibodies against antimicrobial traps that may partly explain ...
News

Blood Biomarker Able to Quickly Diagnose Active ANCA Vasculitis as Distinct from Infections, Study Reports
April 9, 2019
A molecule known as chemokine receptor 8 (CCR8) can be seen at significantly high ...

January 11, 2018

Early Diagnosis of AAV Symptoms Decreases Risk of Renal Damage, Mortality

News

A retrospective study has found an association between the length of prodromal phase – where patients experience non-specific symptoms before more specific disease signs develop – and mortality in antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV) patients. This finding ... Read more

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