Rare Disease Film Festival Highlights Patient and Researcher Unity
Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 ... Read more
Updates
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Patients With SLE, GPA Have High Long-Term Survival Rates After Kidney Transplant, Study Shows
People with systemic lupus erythematosus (SLE) or granulomatosis with polyangiitis (GPA) who undergo kidney transplants have high survival rates over the long term without ... Read more -
ANCA-Associated Vasculitis can Result in Appendicitis Without Other Systemic Symptoms, Case Report Shows
Antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis can result in inflammation of the appendix — commonly known as appendicitis — without any additional systemic symptoms, ... Read more -
Fewer Relapses, Lower Steroid Doses After Dialysis in Japanese AAV Patients, Study Reports
Dialysis for Japanese patients with kidney disease triggered by ANCA-associated vasculitis led to fewer life-threatening relapses and reduced doses of immunosuppressive steroids, a long-term ... Read more -
Japanese Team Suggests Activin A as New Biomarker for Renal Damage in AAV Patients
Measuring the levels of activin A protein in the urine can help clinicians identify patients who have renal problems caused by antineutrophil cytoplasmic antibody ... Read more
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Small RNA Molecule miR-142-3p May Impair Immune T-Cell Function in GPA, Study Finds
High levels of a small RNA molecule called miR-142-3p may impair the function of ... -
Mutant Blood Cells Relatively Common in AAV Patients and Carry Risks and Benefits, Study Suggests
The development of a population of mutated blood cells — a phenomenon called clonal ... -
Young Musician’s ‘Violin for Vasculitis’ Charity Strikes a Chord with Fellow Patients
Allison Lint Ross looked like a typical healthy 16-year-old when she suddenly began to ... -
AAV Linked to Bleeding and Iron Deposits in Lungs in Case Study
ANCA-associated vasculitis (AAV) can cause recurrent bleeding in the lungs, which manifest as hemosiderosis ... -
Repeated Doses of Rituximab May Improve AAV Patients’ Response to the Medication, Study Suggests
Administering rituximab repeatedly may improve the response of patients with ANCA-associated vasculitis (AAV) to ... -
Bacterial Infections, Especially in Lungs, Common in AAV Patients in Southern China, Study Reports
Infection is a common complication of ANCA-associated vasculitis (AAV) that tends to develop within ...
Early Diagnosis of AAV Symptoms Decreases Risk of Renal Damage, Mortality
News
A retrospective study has found an association between the length of prodromal phase – where patients experience non-specific symptoms before more specific disease signs develop – and mortality in antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV) patients. This finding ... Read more