Patients, Supporters Worldwide Recognizing Rare Disease Day 2020
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening ... Read more
Updates
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Plasma Exchange Doesn’t Prolong Survival in ANCA Vasculitis, Study Finds
Plasma exchange does not improve survival or prevent serious kidney disease in people with ANCA vasculitis, a study found. In addition, lower doses ... Read more -
Coxiella Burnetii, or Q Fever Infection, May Trigger ANCA Vasculitis, Case Report Suggests
The bacterium that causes Q fever — an infection usually transmitted to humans by barnyard animals — can trigger anti-neutrophil cytoplasmic autoantibody (ANCA)-associated ... Read more -
FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar
The U.S. Food and Drug Administration (FDA), a vast government bureaucracy, employs about 17,500 people and had a budget of $5.7 billion in 2019. ... Read more
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Patients, Supporters Worldwide Recognizing Rare Disease Day 2020
An abundance of events are afoot around the world to mark Rare Disease Day ... -
With Post-Brexit Move to Amsterdam Complete, EMA Renews Rare Disease Focus
The gleaming new Dutch headquarters of the European Medicines Agency (EMA), fronting Domenico Scarlattilaan ... -
AAV Patients Treated According to Guidelines, With Infection Most Common Side Effect, Polish Study Reports
People in Poland with antineutrophil cytoplasmic antibody (ANCA)-associated vasculitides (AAV) are treated according to ... -
Non-Specific GPA-AAV Symptoms Misdiagnosed as Pneumonia, Case Study Reports
An elderly woman was diagnosed with the granulomatosis with polyangiiti (GPA) subtype of ANCA-associated vasculitis ... -
AAV Can Cause Muscle Weakness, With Diagnosis Requiring Biopsy, Case Study Reports
Muscle weakness may be an under-recognized symptom of antineutrophil cytoplasmic antibodies (ANCA)-associated vasculitis (AAV) ... -
Study Identifies Risk Factors for Higher Cardiovascular Disease Rates in AAV Patients With GPA and EGPA
A family history of cardiovascular disease and higher vasculitis disease activity are risk factors ...
Early Diagnosis of AAV Symptoms Decreases Risk of Renal Damage, Mortality
News
A retrospective study has found an association between the length of prodromal phase – where patients experience non-specific symptoms before more specific disease signs develop – and mortality in antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV) patients. This finding ... Read more