Updates

August 11, 2020August 11, 2020
New Streaming Channel Showcases Rare Disease Films

When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a ... Read more
August 6, 2020August 6, 2020
Plasma Exchange Does Not Improve Survival of Severe AAV Patients, Study Suggests

Plasma exchange does not prolong the survival of patients with severe ANCA-associated vasculitis connected with diffuse alveolar hemorrhage, a potentially life-threatening condition in which ... Read more
July 30, 2020July 30, 2020
ANCA Status, B-cell Levels After Rituximab Treatment Predict Relapses, Study Finds

The presence of detectable ANCA antibodies and B-cells after initial treatment with rituximab — used to induce remission in people with ANCA-associated vasculitis ... Read more
July 27, 2020July 27, 2020
Complement System Activation May Be Linked to Kidney Disease in AAV Patients

The complement system, a component of the immune system, is overactive in people with necrotizing glomerulonephritis, or inflammation in the tiny blood vessels of ... Read more
July 23, 2020July 23, 2020
Fingolimod May Have Potential as AAV Treatment, Rat Study Indicates

Fingolimod (FTY720), a medication used to treat multiple sclerosis, also appears to ease many of the symptoms of ANCA-associated vasculitis (AAV), a new ... Read more

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January 11, 2018

Early Diagnosis of AAV Symptoms Decreases Risk of Renal Damage, Mortality

News

A retrospective study has found an association between the length of prodromal phase – where patients experience non-specific symptoms before more specific disease signs develop – and mortality in antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV) patients. This finding ... Read more

Updates

New Streaming Channel Showcases Rare Disease Films

Plasma Exchange Does Not Improve Survival of Severe AAV Patients, Study Suggests

ANCA Status, B-cell Levels After Rituximab Treatment Predict Relapses, Study Finds

Complement System Activation May Be Linked to Kidney Disease in AAV Patients

Fingolimod May Have Potential as AAV Treatment, Rat Study Indicates

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Rituximab-Glucocorticoid Combo Effective for Relapsed AAV Patients in Phase 3 Trial

ChemoCentryx Asks FDA to Approval Oral Avacopan to Treat AAV

Blood suPAR Levels May Help Assess Disease Severity, Prognosis in AAV Patients

AAV Rare in COPD Patients With AAT Deficiency, Study Finds

Eligibility, Outcome Measures Need Uniformity Across AAV Clinical Trials, Review Says

Monash Researcher Awarded Grant to Study Tolerogenic Dendritic Cells

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Depression More Common in AAV, Linked to Pain, Lower Quality of Life

Cigarette Smoking Linked to Greater Likelihood of MPO-positive AAV

Kidney Involvement at AAV Diagnosis Predicts Major Renal Relapses, Study Finds

Guidelines Given for Rituximab as Maintenance Therapy in 3 AAV Subtypes

Coalition Will Address Racial Disparities in Rare Disease Communities

Trial Supports Long-term Maintenance Therapy With Rituximab

Mycophenolate Mofetil May Be Alternative to Cyclophosphamide, Analysis Shows

First Part of IFX-1 Trial in AAV Patients in EU Fully Enrolled, InflaRx Says

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Request for FDA Approval of Avacopan Likely by Mid-year, ChemoCentryx Says

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Hydralazine Causes Rare Case of AAV with Severe Respiratory, Kidney Failure, Study Reports

AAV Linked to Inflammation, Thickening of Brain Membranes in Case Study

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Early Diagnosis of AAV Symptoms Decreases Risk of Renal Damage, Mortality

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New Streaming Channel Showcases Rare Disease Films

Plasma Exchange Does Not Improve Survival of Severe AAV Patients, Study Suggests

ANCA Status, B-cell Levels After Rituximab Treatment Predict Relapses, Study Finds

Complement System Activation May Be Linked to Kidney Disease in AAV Patients

Fingolimod May Have Potential as AAV Treatment, Rat Study Indicates

Subscribe to our mailing list

Rituximab-Glucocorticoid Combo Effective for Relapsed AAV Patients in Phase 3 Trial

ChemoCentryx Asks FDA to Approval Oral Avacopan to Treat AAV

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Blood suPAR Levels May Help Assess Disease Severity, Prognosis in AAV Patients

AAV Rare in COPD Patients With AAT Deficiency, Study Finds

Eligibility, Outcome Measures Need Uniformity Across AAV Clinical Trials, Review Says

Monash Researcher Awarded Grant to Study Tolerogenic Dendritic Cells

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Depression More Common in AAV, Linked to Pain, Lower Quality of Life

Cigarette Smoking Linked to Greater Likelihood of MPO-positive AAV

Kidney Involvement at AAV Diagnosis Predicts Major Renal Relapses, Study Finds

Guidelines Given for Rituximab as Maintenance Therapy in 3 AAV Subtypes

Coalition Will Address Racial Disparities in Rare Disease Communities

Trial Supports Long-term Maintenance Therapy With Rituximab

Mycophenolate Mofetil May Be Alternative to Cyclophosphamide, Analysis Shows

First Part of IFX-1 Trial in AAV Patients in EU Fully Enrolled, InflaRx Says

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Request for FDA Approval of Avacopan Likely by Mid-year, ChemoCentryx Says

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Hydralazine Causes Rare Case of AAV with Severe Respiratory, Kidney Failure, Study Reports

AAV Linked to Inflammation, Thickening of Brain Membranes in Case Study

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Pin It on Pinterest