We need to talk about fatigue again. After my recent column about the different types of fatigue, I heard from many of you through comments, emails, and shared personal journeys, all saying the same thing: This part is hard. And it doesn’t get talked about enough. I wish I…
The time it takes to diagnose ANCA-associated vasculitis (AAV) may be influenced by disease type, organ involvement, and the medical specialties consulted, according to a single-center study in Germany. The longest median time to diagnosis was seen in people with eosinophilic granulomatosis with polyangiitis (EGPA), the rarest type…
Although long-term survival for people with eosinophilic granulomatosis with polyangiitis (EGPA) has improved in Japan, the introduction of Nucala (mepolizumab) as a treatment for the disease may not, on its own, have had a significant effect. That’s according to a real-world study that analyzed data from 87 EGPA…
Becoming educated and informed about ANCA vasculitis is a good first step. Here you’ll find general information such as the diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your ANCA vasculitis journey.
There is no cure for ANCA vasculitis yet, but here you can find more information about current approved treatments, as well as experimental treatments that are in the pipeline.
Get regular updates to your inbox.
