Older Age, Infections Tied to Poor Outcomes in AAV with Lung Hemorrhage
Outcomes for people with ANCA-associated vasculitis (AAV) who have an alveolar hemorrhage (bleeding in the lungs’ air sacs) are likely to be worse if ... Read more
Updates
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NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum
The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 in Cleveland, Ohio, has been postponed until July 18–20 because ... Read more -
Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19
Even with the coronavirus pandemic ravaging Europe and much of the world, patient advocate Lucia Monaco, PhD, of Italy remains confident that the Paris-based ... Read more -
AAV Patients at 7 Times Higher Risk for Infections, Study Finds
People with ANCA-associated vasculitis have about seven times the risk of developing an infection compared with individuals in the general population, a study ... Read more -
Omitting Rituxan Dose Does Not Affect AAV Relapse Rates, Analysis Suggests
Omitting one dose of Rituxan (rituximab) in a previously tested, tailored treatment regimen did not impact the short-term relapse-free rate of people with ... Read more
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AAV Does Not Raise Healthcare Use, Mortality in Goodpasture’s Syndrome, Study Says
ANCA-associated vasculitis does not increase healthcare resource utilization or in-hospital mortality rates in patients ... -
Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds
The number of treatments for children with rare diseases has grown over the past decade, ... -
GPA Patients Undergo More Hospitalizations With Worse Outcomes, US Study Finds
Patients with granulomatosis with polyangiitis, a subtype of ANCA-associated vasculitis (AAV), have a higher ... -
Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare
In recognition of Rare Disease Day Feb. 29, BioNews Services launched a social media ... -
Lung Involvement Increases Relapse Risk in Chinese Patients With MPO-AAV, Study Says
Lung involvement increases the risk for both induction therapy resistance and disease relapse in ... -
Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review ...
Early Diagnosis of AAV Symptoms Decreases Risk of Renal Damage, Mortality
News
A retrospective study has found an association between the length of prodromal phase – where patients experience non-specific symptoms before more specific disease signs develop – and mortality in antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV) patients. This finding ... Read more