Updates

July 2, 2020July 2, 2020
AAV Rare in COPD Patients With AAT Deficiency, Study Finds

Low levels of the protein alpha-1-antitrypsin (AAT) do not appear to be enough to increase the risk of ANCA-associated vasculitis (AAV) in people ... Read more
June 29, 2020June 29, 2020
Eligibility, Outcome Measures Need Uniformity Across AAV Clinical Trials, Review Says

Clinical trials testing new treatments for people with ANCA-associated vasculitis (AAV) need more uniformity in the patients they recruit and in the ... Read more
June 25, 2020June 25, 2020
Monash Researcher Awarded Grant to Study Tolerogenic Dendritic Cells

The Vasculitis Foundation awarded its “Dr. Chris Cox-Marinelli Young Investigator Award” — a one-year research grant totaling $49,822 — to Dragana Odobasic, PhD, a ... Read more
June 23, 2020June 23, 2020
Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

The Alexion Charitable Foundation has awarded $1.1 million in grants to programs that support those with rare diseases during the COVID-19 pandemic, the organization ... Read more
June 22, 2020June 22, 2020
Depression More Common in AAV, Linked to Pain, Lower Quality of Life

Depression is more common in people with primary systemic vasculitides, including in those with ANCA-associated vasculitis (AAV), than in healthy people, a review study ... Read more

Subscribe to our mailing list

Get regular updates delivered to your email box.

Thanks! Please check your email for a confirmation email.

January 11, 2018

Early Diagnosis of AAV Symptoms Decreases Risk of Renal Damage, Mortality

News

A retrospective study has found an association between the length of prodromal phase – where patients experience non-specific symptoms before more specific disease signs develop – and mortality in antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV) patients. This finding ... Read more

Updates

AAV Rare in COPD Patients With AAT Deficiency, Study Finds

Eligibility, Outcome Measures Need Uniformity Across AAV Clinical Trials, Review Says

Monash Researcher Awarded Grant to Study Tolerogenic Dendritic Cells

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Depression More Common in AAV, Linked to Pain, Lower Quality of Life

Subscribe to our mailing list

Cigarette Smoking Linked to Greater Likelihood of MPO-positive AAV

Kidney Involvement at AAV Diagnosis Predicts Major Renal Relapses, Study Finds

Guidelines Given for Rituximab as Maintenance Therapy in 3 AAV Subtypes

Coalition Will Address Racial Disparities in Rare Disease Communities

Trial Supports Long-term Maintenance Therapy With Rituximab

Mycophenolate Mofetil May Be Alternative to Cyclophosphamide, Analysis Shows

First Part of IFX-1 Trial in AAV Patients in EU Fully Enrolled, InflaRx Says

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Request for FDA Approval of Avacopan Likely by Mid-year, ChemoCentryx Says

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Hydralazine Causes Rare Case of AAV with Severe Respiratory, Kidney Failure, Study Reports

AAV Linked to Inflammation, Thickening of Brain Membranes in Case Study

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Autoimmune COVID-19 Project Seeks Patient Input About Pandemic

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

MS Medication Lemtrada May Cause Life-threatening ANCA Vasculitis, Case Report Shows

High Steroid Dose, Kidney Problems Tied to Severe Infections in Elderly with AAV

NORD’s Advice on COVID-19: You’re Stronger Than You Think

Older Age, Infections Tied to Poor Outcomes in AAV with Lung Hemorrhage

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

Early Diagnosis of AAV Symptoms Decreases Risk of Renal Damage, Mortality

Pin It on Pinterest