Kintsugi, diagnosis, prednisone, Rare Disease Day, pharmacists

Newly Diagnosed: You Are Not Alone on Your Journey

Whether you are a patient or a caregiver, it’s important to remember that you are not alone on this journey with ANCA vasculitis and that others have been in your shoes. Here’s a collection of some of our columnists’ words that they would like to share to help guide, inspire, and encourage you.

I Came, I Saw, I’m Conquering Vasculitis

Columnist Suzanne DePaolis was diagnosed with eosinophilic granulomatosis with polyangiitis (EGPA) 14 years ago. In her battle with the disease, she is inspired by the words of Julius Caesar, “Veni, vidi, vici,” or “veni, vidi, vascie” — I came, I saw, I’m conquering vasculitis.

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Battling GPA for Half My Life

Columnist Sandra Ross reached a milestone in November 2020 — she’s spent half her life battling granulomatosis with polyangiitis (GPA). But she’s in a good place for the first time in her adult life.

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Becoming Rare: From Diagnosis to Acceptance, to Advocacy

Suzanne says she spent her whole life trying to be typical and fit in. When she was diagnosed with EGPA in 2007, it took her a year to realize that she was now rare.

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Diving Into a Sea of Denial

Sandra remembers diving into a sea of denial upon initially being diagnosed. It took some heavy news to get her back onto the right track and start keeping better track of her health issues.

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