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What do you do when life as you know it and as you’ve dreamed about ceases to exist? That was the question I had to answer at 21 years old. Six months before that late-evening “Are you sitting down?” call from two of my doctors, I would’ve never imagined that…

Sometimes the simplest things turn out to have an enormous impact. Vasculitis patients know the value in life’s beautiful details that others may take for granted, such as a stable routine, supportive friends, or a day of the week when our symptoms are quiet. Even though I’ve been…

Once you’ve lived many years with a disorder as stressful as vasculitis, it’s both harder and easier to endure routine medical procedures. A couple weeks ago, I encountered severe dental issues. I never had my wisdom teeth taken out as a young adult, and they were enacting their revenge.

You know the song. The obnoxious, catchy song that rings in your ears incessantly. “This is the song that doesn’t end, Yes, it goes on and on, my friend, Some people started singing it not knowing what it was, And they’ll continue singing it forever just because.” (Repeat…

Brandon Hudgins and Ben Wilson are two longtime friends of mine, both with a similar vasculitis diagnosis. We met while volunteering for the Vasculitis Foundation as young adult leaders. Obviously, life looks very different when you’re sick at such an early age. Now in our 30s, we remain…

Though a new diagnosis can be overwhelming, there’s no doubt it’s educational. Even after years of living with vasculitis, there’s still more to research and experience. Once the immediate danger has passed, there’s more luxury of time to relax into a chronic illness lifestyle. As we learn about…

The Labor Day weekend was a good time to be alive. As an extrovert with a few days off work, I packed the calendar full of social activities, parties, and meals with friends. School and a busy work season are just around the corner, so I felt drawn to enjoy…

Another week, another doctor’s appointment, another stack of bills. Even my pillbox reflects it — each dosage carefully lined up, disappearing one day at at time, only for me to start the same thing over the following week. It’s an endless cycle. The vasculitis lifestyle is a unique one,…

I’ll never forget an irritating incident in Colorado Springs, Colorado, a few years ago. I was touring for my nonprofit, Violin for Vasculitis (now on hiatus due to the complexities of COVID-19). For this project, I would give a public music recital, share the story of my…

I can feel the ominous darkness gathering. I dread it. Usually, I hold authority over my reactions to emotion. Though sadness and hopelessness aren’t controllable, I’ve developed the tools to mitigate their heaviness. They’re all too common with a vasculitis diagnosis. The ominous dread is my mental state,…