Finding Peace Amid the Contradictions of Chronic Illness

Receiving a chronic illness diagnosis can be frustrating and full of apparent dichotomies. After years of searching for answers, a diagnosis is a welcome end, but it also signals a beginning.  The doctors pronounced my disease to be granulomatosis with polyangiitis (called Wegener’s granulomatosis when I first…

Why I Stay in Bed Just a Little Longer Each Day

Some days, I wake up and never want to leave the comfort of my bed. I don’t want to get up and struggle through the day. I don’t want to remember that I have eosinophilic granulomatosis with polyangiitis (EGPA), and even simple tasks take more energy than I have.

Pharmacists Are My Unsung Heroes of the Medical Profession

I have a rare illness called eosinophilic granulomatosis with polyangiitis, or EGPA. It causes an increased number of white blood cells known as eosinophils, which can cause significant inflammation in my organs and my small and medium blood vessels. EGPA has affected my heart, lungs, sinuses, gastrointestinal system,…