Adjusting to a brand new terrain after my EGPA diagnosis
This February marked four years since the day my world — our world — changed forever. For the previous 11 months, my wife, Pam Squires, and I had been stuck in a relentless loop,…
Truth Be Told — Sarah Jones
Sarah Jones, MPA, MS has 25+ years of experience leading non-profits and health care programs. She has designed programs and led trainings for local, national, and international audiences. She holds two Masters degrees: Masters of Science in Strategic Design Management from Parsons the New School and a Masters in Public Administration (healthcare).
Her life irrevocably changed when diagnosed with EGPA, eosinophilic granulomatosis with polyangitis. Sarah and her wife bring their shared passion to improving access to treatments, care and provide Hospital Emergency Advocacy & Training kits for rare disease through their nonprofit – Eosinophilic & Rare Disease Cooperative.
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Now, more than ever, I’m committed to the gift of grace
I’ve been thinking a lot lately about the word “grace.” It’s a word that stirs something in me every time I hear it — something that gives me hope and reminds me to aim…
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