Suzanne, a columnist for ANCA Vasculitis News, speaks at vasculitis conferences and is on the board of the Vasculitis Foundation. Diagnosed at age 40 with eosinophilic granulomatosis with polyangiitis (EGPA), she is passionate about educating and advocating for patients living with vasculitis. She lives among the redwoods in California and enjoys spending time with her horses, chickens, and other transitory wildlife. Suzanne hopes that her column, “Veni, Vidi, Vascie,” will inspire readers to realize that living with a rare illness does not end one’s dreams — rather, it makes those dreams evolve.
I have a rare illness called eosinophilic granulomatosis with polyangiitis, or EGPA. It causes an increased number of white blood cells known as eosinophils, which can cause significant inflammation in ... Read more
This week, my eosinophilic granulomatosis with polyangiitis (EGPA) decided to remind me that it had not gone away and was ever-present. I could feel my symptoms becoming more problematic. I ... Read more