(In)visible Journey – a Column by Sandra Ross

“You’re only as old as you feel,” as the saying goes. Unfortunately, since being diagnosed in 2001 with granulomatosis with polyangiitis at age 19, I’ve always felt older than I actually am. My first experience with that feeling was at diagnosis. The doctor who diagnosed me after a five-day…

Battling an autoimmune condition is difficult enough, but when my own brain decides to work against me, it can be even more challenging. Anxiety is one of my biggest foes, and while I have gotten better at handling it, I have yet to conquer it. I went to my…

Here it is, the end of 2020, and what a year it has been. After so many dark and worrisome days in this pandemic, it is quite a relief to see a light at the end of the tunnel. I am overjoyed that COVID-19 vaccinations have begun in the…

I reached a milestone in November. Half my life ago, I was diagnosed with granulomatosis with polyangiitis (GPA). On Nov. 16, 2001, I was near death when I was admitted to the emergency room. Nineteen years later, here I am. Each of those years has been a bonus in…

Everyone probably battles fatigue at some point, but for those with an autoimmune condition, it’s a war. I have granulomatosis with polyangiitis (GPA), and fatigue is one of my biggest foes. I can handle many of the GPA symptoms and medication side effects without too much of an issue.

When I chose my career path in high school, I had no idea how perfect it would be for me. At 19, I was in college pursuing a career in journalism when I was diagnosed with granulomatosis with polyangiitis (GPA) in 2001. I was the editor and designer of…

Before I was diagnosed with granulomatosis with polyangiitis (GPA) at age 19, I was ready to conquer the world. After the diagnosis, I just wanted to conquer the condition. At first, I was extremely focused on finding out everything I could about GPA. Every detail, every bit of information, and…

After being diagnosed with granulomatosis with polyangiitis, I felt like life as I knew it was over, and a new reality was emerging. When I was diagnosed, I was a 19-year-old sophomore in college. I missed the last half of fall semester, and it was possible that I would…

When I began college in the fall of 2000, I expected it to be similar to what my siblings had experienced or what I had seen on TV: making friends, having fun, enjoying a massive amount of freedom, and even going to class. I didn’t expect to fight an illness…

I was in a hospital room, dazed and confused. A doctor had sent me there after a chaotic trip to the emergency room. The first nurse to treat me said I had a hemoglobin level of 3.8 deciliters. My resting heart rate was 140 beats per minute, and when I…