Truth Be Told - a Column by Sarah Jones

A medical second opinion can greatly benefit those with vasculitis

When people ask about your bucket list, you probably think about travel, adventure, or experiences you’ve always wanted to have. But here’s something you might not have considered adding to the list: getting a medical second opinion, especially if you’re living with a rare disease. I’ve found it incredibly helpful.

Allowing a full range of emotions might help our healing

Warning: If you’re someone who avoids anger like the plague, you may want to sit down for this one. But stay with me — because research suggests that allowing yourself to feel anger might actually support your happiness. I know this advice might sound strange coming from someone who…

The importance of building a care team that works for you

I’ve been reflecting lately on just how important — and how hard — it is to build a care team that actually works for you. It sounds simple, but it’s not. And if you’ve ever had to start from scratch or find a new provider, you know how unsettling that…

The medication that’s changed my journey with EGPA disease

Note: This column describes the author’s own experiences with Fasenra (benralizumab). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Are you on Instagram? I’ll admit it — my wife and I can’t stop watching those silly little dances. Our favorite?…