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This week, my eosinophilic granulomatosis with polyangiitis (EGPA) decided to remind me that it had not gone away and was ever-present. I could feel my symptoms becoming more problematic. I tried to ignore them. The peripheral neuropathy in my feet became more noticeable and interrupted my sleep. My asthma…

“You’re braver than you believe, stronger than you seem, and smarter than you think.” These words are on a plaque that hangs from my medicine shelf. I see them every day as I take my morning and evening medication. They serve as a reminder that I can continue to…

When someone we know is sick, we tend to tell them to “get well soon.” These words seem polite and social. We say them to anyone who is sick. It has always seemed like the correct phrase to use. But why do those three polite, socially acceptable words feel like…

Here it is, the end of 2020, and what a year it has been. After so many dark and worrisome days in this pandemic, it is quite a relief to see a light at the end of the tunnel. I am overjoyed that COVID-19 vaccinations have begun in the…

I have been dealing with vasculitis symptoms and fatigue for the past 14 holiday seasons. In the early years, I was so worried about disappointing my family and friends that I tried to be my old self and accomplish everything. This behavior always led to a series of disasters.

“Veni, vidi, vici” is translated from Latin as “I came, I saw, I conquered.” Julius Caesar first said this after a victorious battle. Having a rare illness is a battle every day. I battle to stay alive. I battle to live a fulfilling life. I battle to get out of…

I reached a milestone in November. Half my life ago, I was diagnosed with granulomatosis with polyangiitis (GPA). On Nov. 16, 2001, I was near death when I was admitted to the emergency room. Nineteen years later, here I am. Each of those years has been a bonus in…

Everyone probably battles fatigue at some point, but for those with an autoimmune condition, it’s a war. I have granulomatosis with polyangiitis (GPA), and fatigue is one of my biggest foes. I can handle many of the GPA symptoms and medication side effects without too much of an issue.

When I chose my career path in high school, I had no idea how perfect it would be for me. At 19, I was in college pursuing a career in journalism when I was diagnosed with granulomatosis with polyangiitis (GPA) in 2001. I was the editor and designer of…

Before I was diagnosed with granulomatosis with polyangiitis (GPA) at age 19, I was ready to conquer the world. After the diagnosis, I just wanted to conquer the condition. At first, I was extremely focused on finding out everything I could about GPA. Every detail, every bit of information, and…