As the holiday season approaches, people will begin making travel plans, and their to-do lists can be extensive. Book a flight. Communicate with family. Check the weather forecast. Do laundry. Being sick and having a weakened immune system, however, can add even more items…
Columns
When November comes, I start to think about hibernating. As soon as the temperature dips below a certain range, some kind of primitive signal goes off in my head. It’s a little voice that says, “Time to stay indoors and get comfortable.” After all, when it’s dreary…
It sometimes feels silly when I receive an invitation for an event happening more than a year in the future. This is because the details of my everyday life can be so overwhelming it’s all I can do to focus on the here and now. Maybe I’ll focus on next…
What Do We Do About Stress?
The topic of stress is much too familiar to autoimmune disease patients. Even in remission, I’m not immune to the overwhelming feeling that comes when my cortisol levels spike. I’m not a physician or a researcher, and plenty of studies about the science behind stress are available to…
My Vasculitis Origin Story
I’ve been writing my column, “Peaceful Chaos,” about living with granulomatosis with polyangiitis (GPA) since June. I’ve written about my medications, doctor appointments, and the daily struggles of being chronically ill. I’ve discussed the psychological effect this disease has had on me and on others, and what…
People are social creatures who thrive when nurtured, and when our achievements — such as weddings, graduations, promotions, and new babies — are celebrated. But when challenges arise, a supportive foundation can prove even more valuable. After I was diagnosed with granulomatosis…
I’m Not Afraid of Aging
The year I turned 30, I experienced a vague sense of panic. It seemed like the age at which the fundamental aspects of life — career, family, hobbies — coalesce into permanence. I had recently moved across the country to resettle in a new city that I enjoyed. My work…
Being Sick Has Taught Me Empathy
It’s an experience every pet owner fears: Our 8-month-old German shepherd needed to be rushed to the emergency vet. Luckily, four hours and several hundred dollars later, he was sent home with some meds and pronounced just fine. While my husband and I were overjoyed that our beloved pup was…
This summer was a lovely one. My days were filled with friendship, travel, gardening, and delicious cuisine. I had enough work to keep busy, but wasn’t overloaded. We even brought home a new puppy — a gorgeous, white German shepherd that is smart and loyal. I had so many good…
Brave Is Not in My Vocabulary
I’ve learned countless new words since my diagnosis — phlebotomy, stenosis, biomarker, etiology, hemoptysis, to name a few. There are long strings of syllables for medications and treatment options. And various types of doctors with “-ologist” at the end of their title. Even the name of my disease is a…
Recent Posts
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- The importance of rest in managing vasculitis-related fatigue
- Diagnostic delays in AAV vary by subtype and disease features
- EGPA long-term survival rates improving for many reasons: Study
- Grieving the loss of retirement after going out on disability