December 11, 2019December 14, 2019
Mitochondrial DNA May Serve as Urinary Biomarker of Kidney Damage, Chinese Study Suggests
News
Mitochondrial DNA (mtDNA) — DNA specific to mitochondria, the cell’s powerhouses — may be used as a urinary biomarker ... Read more
December 9, 2019December 9, 2019
Nutritional Status Score Can Help Predict Prognosis of AAV Patients, Study Says
News
An instrument that assesses the nutritional status of individuals can be used to predict the prognosis of patients with ... Read more
December 5, 2019
HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases
News
Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases ... Read more
December 4, 2019December 4, 2019
Inflammation Seems to Play Role in Bad Cholesterol Levels, Research Suggests
News
ANCA-associated vasculitis (AAV) patients have lower levels of low-density lipoprotein (LDL), or “bad cholesterol,” when compared to people ... Read more
December 2, 2019December 2, 2019
Disease Activity and Quality of Life Influence Work Productivity of AAV Patients, Study Finds
News
Work productivity of people with ANCA-associated vasculitis is influenced by their disease activity, the extent of organ damage, ... Read more
November 27, 2019November 27, 2019
Avacopan Shows Superiority Over Steroids to Treat AAV in Phase 3 ADVOCATE Trial
News
Avacopan (CCX168) can effectively improve remission rates, kidney function, and overall quality of life of patients with ... Read more
November 25, 2019November 26, 2019
Smoking Raises Person’s Risk of AAV, Large US Study Suggests
News
Being a former or current cigarette smoker significantly increases the risk of developing ANCA-associated vasculitis (AAV), data from ... Read more
November 20, 2019November 20, 2019
High-dose Glucocorticoids Common for AAV Patients in Europe, But Response Is Limited, Study Reports
News
High-dose glucocorticoids — a type of corticosteroid hormone — are commonly prescribed as part of remission-induction therapy to people ... Read more
November 13, 2019
Rare Disease Film Festival Highlights Patient and Researcher Unity
News
Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing ... Read more
November 11, 2019November 11, 2019
Patients With SLE, GPA Have High Long-Term Survival Rates After Kidney Transplant, Study Shows
News
People with systemic lupus erythematosus (SLE) or granulomatosis with polyangiitis (GPA) who undergo kidney transplants have high survival rates ... Read more
November 6, 2019November 6, 2019
ANCA-Associated Vasculitis can Result in Appendicitis Without Other Systemic Symptoms, Case Report Shows
News
Antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis can result in inflammation of the appendix — commonly known as appendicitis — ... Read more
November 4, 2019November 4, 2019
Fewer Relapses, Lower Steroid Doses After Dialysis in Japanese AAV Patients, Study Reports
News
Dialysis for Japanese patients with kidney disease triggered by ANCA-associated vasculitis led to fewer life-threatening relapses and reduced doses ... Read more

December 11, 2019December 14, 2019

Mitochondrial DNA May Serve as Urinary Biomarker of Kidney Damage, Chinese Study Suggests

News

Mitochondrial DNA (mtDNA) — DNA specific to mitochondria, the cell’s powerhouses — may be used as a urinary biomarker of kidney damage in people with ANCA-associated vasculitis (AAV), according to ... Read more

December 9, 2019December 9, 2019

Nutritional Status Score Can Help Predict Prognosis of AAV Patients, Study Says

News

An instrument that assesses the nutritional status of individuals can be used to predict the prognosis of patients with ANCA-associated vasculitis, a study suggests. The study, “Controlling Nutritional Status ... Read more

December 5, 2019

HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases

News

Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases and ensuring timely, affordable access to lifesaving treatments, the nation’s ... Read more

December 4, 2019December 4, 2019

Inflammation Seems to Play Role in Bad Cholesterol Levels, Research Suggests

News

ANCA-associated vasculitis (AAV) patients have lower levels of low-density lipoprotein (LDL), or “bad cholesterol,” when compared to people without the disease, a study suggests. These differences seemed to dissipate ... Read more

December 2, 2019December 2, 2019

Disease Activity and Quality of Life Influence Work Productivity of AAV Patients, Study Finds

News

Work productivity of people with ANCA-associated vasculitis is influenced by their disease activity, the extent of organ damage, and their health-related quality of life, a study reports. The findings ... Read more

November 27, 2019November 27, 2019

Avacopan Shows Superiority Over Steroids to Treat AAV in Phase 3 ADVOCATE Trial

News

Avacopan (CCX168) can effectively improve remission rates, kidney function, and overall quality of life of patients with anti-neutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV), compared with standard therapy with steroids, ... Read more

November 25, 2019November 26, 2019

Smoking Raises Person’s Risk of AAV, Large US Study Suggests

News

Being a former or current cigarette smoker significantly increases the risk of developing ANCA-associated vasculitis (AAV), data from a large U.S. study show. This association was particularly strong in ... Read more

November 20, 2019November 20, 2019

High-dose Glucocorticoids Common for AAV Patients in Europe, But Response Is Limited, Study Reports

News

High-dose glucocorticoids — a type of corticosteroid hormone — are commonly prescribed as part of remission-induction therapy to people with ANCA-associated vasculitis (AAV) in Europe, a retrospective study reports. ... Read more

November 13, 2019

Rare Disease Film Festival Highlights Patient and Researcher Unity

News

Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 and 10 in San Francisco. ... Read more

November 11, 2019November 11, 2019

Patients With SLE, GPA Have High Long-Term Survival Rates After Kidney Transplant, Study Shows

News

People with systemic lupus erythematosus (SLE) or granulomatosis with polyangiitis (GPA) who undergo kidney transplants have high survival rates over the long term without evidence of an increased risk ... Read more