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Throughout May, ANCA Vasculitis News is recognizing Vasculitis Awareness Month with a variety of stories that represent different perspectives on life with vasculitis that we hope help to inspire and empower our readers. These stories highlight some of the unique challenges of living with vasculitis, as well as stories of hope, inspiration, and other topics that help to generate awareness among the ANCA vasculitis community. Follow along with the series here or visit us on Facebook or Instagram using the hashtag #ANCASpotlight.

May 31, 2024 by Bionews Staff

GPA vasculitis wreaked havoc in my life, but I’m enduring

Christine MacFadyen’s symptoms appeared 15 years ago, and she was diagnosed five years ago. (Photos courtesy of Christine MacFadyen) This is Christine MacFadyen’s story: I was a fun-loving, always smiling, energetic, adventurous woman.

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May 29, 2024 by Bionews Staff

Going from zero to 60 in 6 months of living with ANCA vasculitis

Sarah Wellings, left, smiles with Isla Bell before her ANCA vasculitis diagnosis. (Photos courtesy of Sarah Wellings) This is Sarah Wellings’ story: Last night I dreamed I was running again. It seems my…

May 24, 2024 by Bionews Staff

A vasculitis diagnosis left me lost in translation, in more ways than one

Jennifer Feinson Destours is an American with ANCA vasculitis living in Paris. This photo was taken two years post-diagnosis. (Photos courtesy of Jennifer Feinson Destours) This is Jennifer Feinson Destours’ story: My life…

May 22, 2024 by Bionews Staff

Finding hope amid the life-changing challenges of vasculitis

Rob Nelson explores Peggy’s Cove in Nova Scotia, Canada, in fall 2021. (Photos courtesy of Rob Nelson) This is Rob Nelson’s story: Receiving a vasculitis diagnosis has a dramatic effect physically,…

May 19, 2024 by Bionews Staff

My wife has EGPA; I have EGPA by proxy

This is Pam Squires’ story: Pam Squires says her life with her wife, Sarah Jones, who has eosinophilic granulomatosis with polyangiitis (EGPA), is like having EGPA by proxy. (Courtesy of Sarah Jones) My…

May 17, 2024 by Bionews Staff

Living with EGPA disease is one big game of whack-a-mole

Sarah Jones smiles for the camera. (Photos courtesy of Sarah Jones) This is Sarah Jones’ story: I thought on the day of my EGPA diagnosis — fully, eosinophilic granulomatosis with polyangiitis —…

May 15, 2024 by Bionews Staff

Struggling with fantasy vs. reality as an ANCA vasculitis parent

Karna Karlsrud, left, poses for a photo with her daughter, Clea, who has vasculitis. (Photos courtesy of Karna Karlsrud) This is Karna Karlsrud’s story: When I adopted my beautiful daughter, Clea, 23 years…

May 12, 2024 by Bionews Staff

Navigating life on the up-and-down journey that’s vasculitis

Kathy Olevsky prepares to record a Vasculitis Foundation medical webinar in her office. (Photos courtesy of Kathy Olevsky) This is Kathy Olevsky’s story: In late 2008, I was diagnosed with microscopic polyangiitis…

May 8, 2024 by Bionews Staff

Making the most of life, even after the plot twist of vasculitis

Ioana Miclea has eosinophilic granulomatosis with polyangiitis. (Photos courtesy of Ioana Miclea) This is Ioana Miclea’s story. So, picture this: I’m Ioana, your quintessential 20-something girl, living it up with nights out, camping…

May 3, 2024 by Bionews Staff

Picking up the pieces after my vasculitis diagnosis

Janice Barnett poses with a textile piece in the making. (Photos courtesy of Janice Barnett) This is Janice Barnett’s story: My diagnosis of eosinophilic granulomatosis with polyangiitis, formerly known as Churg-Strauss…

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Recent Posts

  • Finding resilience after a challenging vasculitis diagnosis
  • Older age, higher steroid dose raise risk of death due to infection in AAV
  • How I learned to thrive while living with vasculitis
  • Awareness Month to focus on personal experiences, connections
  • We all have different approaches to living with chronic illness


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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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