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DTSTART;TZID=America/Chicago:20260124T130000
DTEND;TZID=America/Chicago:20260124T130000
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CREATED:20251025T145815Z
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UID:10000013-1769259600-1769259600@ancavasculitisnews.com
SUMMARY:APFED & NY Islanders Take Eosinophilic Disease Awareness to the Ice
DESCRIPTION:The American Partnership for Eosinophilic Disorders (APFED) is proud to partner with the New York Islanders to bring eosinophilic disease awareness to the ice. Join us for a special awareness game on January 24\, 2026\, at 1:00 PM\, as the Islanders take on the Buffalo Sabres in what promises to be an unforgettable afternoon of hockey and community impact. \nThis exciting partnership combines the thrill of professional hockey with a meaningful mission: raising awareness and funds for eosinophilic disease research. Eosinophilic disorders are chronic immune-mediated conditions that affect thousands of children and adults. These diseases can cause severe symptoms that significantly impacting quality of life. \nA portion of all ticket sales from this game will be donated directly to APFED to support groundbreaking research that advances understanding and treatment of these complex conditions. Throughout the game\, fans will have opportunities to learn more about eosinophilic disorders through special awareness activities and educational materials. \nWhether you’re a lifelong Islanders fan\, part of the eosinophilic disease community\, or simply looking for a great way to support an important cause\, this game offers something special. Your attendance helps fund research that brings hope to families facing these challenging conditions while enjoying exciting NHL action. \nDon’t miss this opportunity to be part of something bigger than the game. Get your tickets today and help APFED score big for eosinophilic disease awareness!
URL:https://ancavasculitisnews.com/event/apfed-ny-islanders-take-eosinophilic-disease-awareness-to-the-ice/
LOCATION:NY Islanders – UBS Arena\, 2400 Hempstead Turnpike\, Elmont\, NY\, 11003\, United States
CATEGORIES:APFED
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ORGANIZER;CN="APFED":MAILTO:mjstrobel@apfed.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251113T120000
DTEND;TZID=America/Chicago:20251113T130000
DTSTAMP:20260424T010126
CREATED:20250424T150813Z
LAST-MODIFIED:20250424T170342Z
UID:10000009-1763035200-1763038800@ancavasculitisnews.com
SUMMARY:Decision Tree: Best Practice For Care
DESCRIPTION:Figuring out how to navigate the complex health care system can be maddening. Join us to learn about a tool that will help you find the care you need and reduce the stress and strain of making decisions each step of the way!
URL:https://ancavasculitisnews.com/event/decision-tree-best-practice-for-care/
LOCATION:NY
CATEGORIES:Eosinophilic & Rare Disease Cooperative
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ORGANIZER;CN="Eosinophilic & Rare Disease Cooperative":MAILTO:info@eosinophilraredisease.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251108T083000
DTEND;TZID=America/Chicago:20251108T153000
DTSTAMP:20260424T010126
CREATED:20250811T200528Z
LAST-MODIFIED:20250811T200528Z
UID:10000012-1762590600-1762615800@ancavasculitisnews.com
SUMMARY:Patient Conference- New York
DESCRIPTION:Learn from and engage with medical professionals\, researchers and patients. Topics include emerging therapies\, living well with vasculitis\, new medications\, nutrition and more.
URL:https://ancavasculitisnews.com/event/patient-conference-new-york/
LOCATION:Richard L. Menschel Education Center\, Hospital for Special Surgery\, 535 East 70th Street\, 2nd Floor\, New York\, NY\, 10021\, United States
CATEGORIES:Vasculitis Foundation
ATTACH;FMTTYPE=image/jpeg:https://ancavasculitisnews.com/wp-content/uploads/2025/08/Learn-Empower-Engage-1-1-e1754941038736.jpg
ORGANIZER;CN="Vasculitis Foundation":MAILTO:tjefferies@vasculitisfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251101T083000
DTEND;TZID=America/Chicago:20251101T153000
DTSTAMP:20260424T010126
CREATED:20250811T200612Z
LAST-MODIFIED:20250811T200612Z
UID:10000011-1761985800-1762011000@ancavasculitisnews.com
SUMMARY:Patient Conference- Charleston
DESCRIPTION:Learn from and engage with medical professionals\, researchers and patients. Topics include emerging therapies\, living well with vasculitis\, new medications\, nutrition and more.
URL:https://ancavasculitisnews.com/event/patient-conference-charleston/
LOCATION:BioEngineering Building Auditorium\, Medical University of South Carolina\, 68 President Street\, Charleston\, SC\, 29425\, United States
CATEGORIES:Vasculitis Foundation
ATTACH;FMTTYPE=image/jpeg:https://ancavasculitisnews.com/wp-content/uploads/2025/08/Learn-Empower-Engage-1-1-e1754941038736.jpg
ORGANIZER;CN="Vasculitis Foundation":MAILTO:tjefferies@vasculitisfoundation.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250731T120000
DTEND;TZID=America/Chicago:20250731T130000
DTSTAMP:20260424T010126
CREATED:20250718T192531Z
LAST-MODIFIED:20250718T192531Z
UID:10000010-1753963200-1753966800@ancavasculitisnews.com
SUMMARY:Keeping It Real: Surfacing Tough Topics With Your Provider
DESCRIPTION:Join us for a conversation about how to effectively communicate and build a relationship with your healthcare provider. You will have an opportunity to watch a conversation unfolding with a patient with ANCA Vasculitis and a healthcare provider. Then\, we will sort through barriers and tools to break down the barriers.
URL:https://ancavasculitisnews.com/event/keeping-it-real-surfacing-tough-topics-with-your-provider/
LOCATION:
CATEGORIES:Eosinophilic & Rare Disease Cooperative
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ORGANIZER;CN="Eosinophilic & Rare Disease Cooperative":MAILTO:info@eosinophilraredisease.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250626T120000
DTEND;TZID=America/Chicago:20250626T130000
DTSTAMP:20260424T010126
CREATED:20250424T150853Z
LAST-MODIFIED:20250424T170439Z
UID:10000008-1750939200-1750942800@ancavasculitisnews.com
SUMMARY:Fasenra: Double Action for EGPA
DESCRIPTION:EGPA now has a second treatment! Fasenra was approved in the fall of 2024 for EGPA and brings a new take on addressing the issues. Join this livestream to learn about the dual impact: IL-5 unique action and activating natural killer cells. 
URL:https://ancavasculitisnews.com/event/fasenra-double-action-for-egpa/
LOCATION:NY
CATEGORIES:Eosinophilic & Rare Disease Cooperative
ATTACH;FMTTYPE=image/jpeg:https://ancavasculitisnews.com/wp-content/uploads/2025/04/ERDC-Event-Image-JPG-e1745514108736.jpg
ORGANIZER;CN="Eosinophilic & Rare Disease Cooperative":MAILTO:info@eosinophilraredisease.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250605T120000
DTEND;TZID=America/Chicago:20250605T130000
DTSTAMP:20260424T010126
CREATED:20250424T151937Z
LAST-MODIFIED:20250424T170249Z
UID:10000007-1749124800-1749128400@ancavasculitisnews.com
SUMMARY:Quality of Life: Creating A Personalized Tracking Tool
DESCRIPTION:​Just as the disease is unique for each person\, so is the tracking of quality of life. Join us to learn about how to create a tool that works for you to track quality of life and disease impact. We will also talk about how to use this tool to more effectively communicate with your provider!
URL:https://ancavasculitisnews.com/event/quality-of-life-creating-a-personalized-tracking-tool/
LOCATION:NY
CATEGORIES:Eosinophilic & Rare Disease Cooperative
ATTACH;FMTTYPE=image/jpeg:https://ancavasculitisnews.com/wp-content/uploads/2025/04/ERDC-Event-Image-JPG-e1745514108736.jpg
ORGANIZER;CN="Eosinophilic & Rare Disease Cooperative":MAILTO:info@eosinophilraredisease.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250503T083000
DTEND;TZID=America/Chicago:20250503T153000
DTSTAMP:20260424T010126
CREATED:20250214T182322Z
LAST-MODIFIED:20250214T182322Z
UID:10000006-1746261000-1746286200@ancavasculitisnews.com
SUMMARY:Santa Monica\, California - Learn. Engage. Empower. Conference
DESCRIPTION:Our one-day\, in-person vasculitis conferences feature engaging and informative presentations from medical experts and researchers as well as chances to connect with other people who\, like you\, get what it is like to live with vasculitis or love someone with vasculitis. Whether you are newly diagnosed with vasculitis or have been navigating a vasculitis diagnosis for years\, you will find opportunities to learn\, engage\, and be empowered. \nThis conference is in-person only. Sessions will not be recorded or streamed. 
URL:https://ancavasculitisnews.com/event/santa-monica-california-learn-engage-empower-conference/
LOCATION:Courtyard by Marriott\, 6333 Bristol Parkway\, Culver City\, CA\, 90230\, United States
CATEGORIES:Vasculitis Foundation
ATTACH;FMTTYPE=image/jpeg:https://ancavasculitisnews.com/wp-content/uploads/2025/01/Learn-Empower-Engage-e1737741912871.jpg
ORGANIZER;CN="Vasculitis Foundation":MAILTO:tjefferies@vasculitisfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250426T083000
DTEND;TZID=America/Chicago:20250426T153000
DTSTAMP:20260424T010126
CREATED:20250214T183530Z
LAST-MODIFIED:20250214T183530Z
UID:10000005-1745656200-1745681400@ancavasculitisnews.com
SUMMARY:Minneapolis\, Minnesota - Learn. Engage. Empower. Conference
DESCRIPTION:Our one-day\, in-person vasculitis conferences feature engaging and informative presentations from medical experts and researchers as well as chances to connect with other people who\, like you\, get what it is like to live with vasculitis or love someone with vasculitis. Whether you are newly diagnosed with vasculitis or have been navigating a vasculitis diagnosis for years\, you will find opportunities to learn\, engage\, and be empowered. \nThis conference is in-person only. Sessions will not be recorded or streamed. 
URL:https://ancavasculitisnews.com/event/minneapolis-minnesota-learn-engage-empower-conference/
LOCATION:InterContinental Hotel Minneapolis\, 5005 Glumack Drive\, St. Paul\, MN\, 55111\, United States
CATEGORIES:Vasculitis Foundation
ATTACH;FMTTYPE=image/jpeg:https://ancavasculitisnews.com/wp-content/uploads/2025/01/Learn-Empower-Engage-e1737741912871.jpg
ORGANIZER;CN="Vasculitis Foundation":MAILTO:tjefferies@vasculitisfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250322T083000
DTEND;TZID=America/Chicago:20250322T150000
DTSTAMP:20260424T010126
CREATED:20250124T182409Z
LAST-MODIFIED:20250124T182409Z
UID:10000004-1742632200-1742655600@ancavasculitisnews.com
SUMMARY:Patient Conference\, Nashville Tennessee
DESCRIPTION:Our one-day\, in-person vasculitis conferences feature engaging and informative presentations from medical experts and researchers as well as chances to connect with other people who\, like you\, get what it is like to live with vasculitis or love someone with vasculitis. Whether you are newly diagnosed with vasculitis or have been navigating a vasculitis diagnosis for years\, you will find opportunities to learn\, engage\, and be empowered. \nThis conference is in-person only. Sessions will not be recorded or streamed. 
URL:https://ancavasculitisnews.com/event/patient-conference-nashville-tennessee/
LOCATION:Holiday Inn Nashville Airport\, 2864 Elm Hill Pike\, Nashville\, TN\, 37214\, United States
CATEGORIES:Vasculitis Foundation
ATTACH;FMTTYPE=image/jpeg:https://ancavasculitisnews.com/wp-content/uploads/2025/01/Learn-Empower-Engage-e1737741912871.jpg
ORGANIZER;CN="Vasculitis Foundation":MAILTO:tjefferies@vasculitisfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250118T080000
DTEND;TZID=America/Chicago:20250118T153000
DTSTAMP:20260424T010126
CREATED:20241211T174354Z
LAST-MODIFIED:20241212T201817Z
UID:10000001-1737187200-1737214200@ancavasculitisnews.com
SUMMARY:Patient Conference - Seattle
DESCRIPTION:Learn from and engage with medical professionals\, researchers and patients. Topics include emerging therapies\, living well with vasculitis\, new medications\, nutrition and more.
URL:https://ancavasculitisnews.com/event/patient-conference-seattle/
LOCATION:Cedarbrook Lodge\, 18525 36th Ave. South\, Seattle\, WA\, 98188\, United States
CATEGORIES:Vasculitis Foundation
ORGANIZER;CN="Vasculitis Foundation":MAILTO:tjefferies@vasculitisfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241217T150000
DTEND;TZID=America/Chicago:20241217T160000
DTSTAMP:20260424T010126
CREATED:20241211T175100Z
LAST-MODIFIED:20241212T201749Z
UID:10000003-1734447600-1734451200@ancavasculitisnews.com
SUMMARY:Genetics and Vasculitis
DESCRIPTION:Dr. Sharon Chung\, Professor of Clinical Medicine and Director at UCSF Vasculitis Clinic will give a patient-friendly overview of the role of genetics and the potential impact on vasculitis development.
URL:https://ancavasculitisnews.com/event/genetics-and-vasculitis/
LOCATION:NY
CATEGORIES:Vasculitis Foundation
ORGANIZER;CN="Vasculitis Foundation":MAILTO:tjefferies@vasculitisfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241214T100000
DTEND;TZID=America/Chicago:20241214T110000
DTSTAMP:20260424T010126
CREATED:20241211T175009Z
LAST-MODIFIED:20241212T201712Z
UID:10000002-1734170400-1734174000@ancavasculitisnews.com
SUMMARY:Fasenra and Nucala: Approved Therapies for EGPA
DESCRIPTION:Join us for this exciting\, live webinar led by Peter Merkel\, MD\, MPH. Dr. Merkel is the Chief of the Division of Rheumatology and Professor of Medicine and Epidemiology at the University of Pennsylvania. The webinar will focus on two drug studies for eosinophilic granulomatosis with polyangiitis (EGPA).
URL:https://ancavasculitisnews.com/event/fasenra-and-nucala-approved-therapies-for-egpa/
LOCATION:NY
CATEGORIES:Vasculitis Foundation
ORGANIZER;CN="Vasculitis Foundation":MAILTO:tjefferies@vasculitisfoundation.org
END:VEVENT
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