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March 4, 2020March 4, 2020

Lung Involvement Increases Relapse Risk in Chinese Patients With MPO-AAV, Study Says

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Lung involvement increases the risk for both induction therapy resistance and disease relapse in ANCA-associated vasculitis (AAV) patients with autoantibodies against myeloperoxidase, a Chinese study suggests. High levels of ... Read more

March 3, 2020March 3, 2020

Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29

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Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will be available free-of-charge from Elsevier. The offer runs through April 30, ... Read more

March 2, 2020March 2, 2020

AAV That Involves Central Nervous System Linked to More Active Disease, Chinese Study Suggests

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In people with antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV), central nervous system involvement is associated with more active disease and peripheral nervous system involvement, a recent Chinese study suggests. ... Read more

February 26, 2020February 26, 2020

Advice on Starting Nonprofit Groups for Rare and Other Diseases Focus of NORD Webinar

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Starting a 501(c)(3) tax-exempt nonprofit isn’t easy, but the National Organization for Rare Disorders gave a few tips for those looking to begin the complex process in its Feb. ... Read more

February 24, 2020February 24, 2020

Study Recommends AAV Renal Risk Score to Predict Serious Kidney Disease in Patients

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A combination of both blood tests and biopsy (tissue) analysis was better at predicting end-stage renal disease in people with anti-neutrophil cytoplasmic antibody-associated vasculitis (AAV) compared to tissue analysis ... Read more

February 20, 2020March 3, 2020

Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

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An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening awareness about rare diseases and ... Read more

February 19, 2020February 19, 2020

Plasma Exchange Doesn’t Prolong Survival in ANCA Vasculitis, Study Finds

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Plasma exchange does not improve survival or prevent serious kidney disease in people with ANCA vasculitis, a study found. In addition, lower doses of glucocorticoids — steroid hormones that ... Read more

February 17, 2020February 17, 2020

Kidney Infections Can Mimic AAV Symptoms, Case Study Finds

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Blood vessels in the kidneys that swell due to an infection can mimic ANCA-associated vasculitis (AAV), making diagnosis and treatment of these two conditions challenging, a case study shows. ... Read more

February 12, 2020February 12, 2020

Coxiella Burnetii, or Q Fever Infection, May Trigger ANCA Vasculitis, Case Report Suggests

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The bacterium that causes Q fever — an infection usually transmitted to humans by barnyard animals — can trigger anti-neutrophil cytoplasmic autoantibody (ANCA)-associated vasculitis (AAV), a recent case report ... Read more

February 10, 2020February 10, 2020

FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar

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The U.S. Food and Drug Administration (FDA), a vast government bureaucracy, employs about 17,500 people and had a budget of $5.7 billion in 2019. Yet even with its enormous ... Read more

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