News

October 26, 2020October 26, 2020

AAV Patients Not at Greater COVID-19 Risk, But Care Is Disrupted Due to Pandemic

News

People with ANCA-associated vasculitis (AAV) have a similar incidence of COVID-19 as the general population, but the ongoing pandemic has significantly disrupted routine medical care for patients with this ... Read more

October 21, 2020October 21, 2020

High Relapse Risk Found in AAV Patients With Recurrent or Persistent ANCA Antibodies

News

Having persistently or recurrently high levels of ANCA antibodies is associated with a greater risk of relapse in people with ANCA-associated vasculitis (AAV), a recent study has found. In ... Read more

October 19, 2020October 19, 2020

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

News, syndicated

A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like the option of continuing its use in future appointments, a ... Read more

October 14, 2020October 14, 2020

ANCA Patients With Kidney Inflammation at High Risk for VTE Blood Clots

News

People with kidney inflammation due to ANCA-associated vasculitis (AAV) have a high incidence of venous thromboembolism or VTE, a potentially dangerous type of blood clot, a new study shows. ... Read more

October 12, 2020October 12, 2020

Heat Shock Proteins in Kidneys Linked to Poorer Outcomes in AAV Patients

News

A group of proteins that modulate immune responses, called heat shock proteins (HSPs), are significantly elevated in the kidneys of people with ANCA-associated vasculitis (AAV), and their levels are ... Read more

October 7, 2020October 7, 2020

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

News, syndicated

Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their favorite photographs in a calendar contest to heighten awareness of rare ... Read more

September 30, 2020September 30, 2020

Plasma Exchange Shows Little Benefit in AAV Treatment, Meta-analysis Finds

News

Adding plasma exchange to immune-suppressing treatment does not significantly improve clinical outcomes in people with ANCA-associated vasculitis (AAV), a new meta-analysis indicates. The analysis, “The role of plasma exchange ... Read more

September 28, 2020September 28, 2020

B-cells Marker Levels May Predict Complete Responses to Rituximab in GPA, MPA

News

High blood levels of FCRL5 — a protein mainly found in certain B-cells, a type of immune cell — are linked with a greater likelihood of achieving and maintaining ... Read more

September 23, 2020September 23, 2020

Exagen Launches Test for Rapid Diagnosis, Differentiation of AAV Subtypes

News

Exagen, a life sciences company developing tests for the diagnosis, prognosis, and monitoring of autoimmune conditions, has launched a new test for the rapid diagnosis of ANCA-associated vasculitis (AAV). ... Read more

September 21, 2020September 21, 2020

FDA to Consider Avacopan as Potential Oral Treatment of AAV

News

The U.S. Food and Drug Administration (FDA) has accepted for review ChemoCentryx‘s application requesting the approval of avacopan to treat ANCA-associated vasculitis (AAV), the company announced in a press release. The ... Read more