News

November 1, 2018

Woman with Double-Positive Disease Treated with Plasma Exchange Combo, Case Study Shows

News

A woman in Japan diagnosed with both ANCA-associated vasculitis and anti-glomerular basement membrane (GBM) disease — an extremely rare medical condition known as double-positive disease — was successfully treated with ... Read more

October 30, 2018

New Classification System Enables Prediction of Kidney Function and Survival in ANCA Glomerulonephritis Patients

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A new classification system of types of glomerular lesions in the kidney enables better prediction of renal function and survival in patients with ANCA-associated glomerulonephritis, according to a nationwide ... Read more

October 29, 2018

#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach

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With the U.S. midterm elections now less than two weeks away, patient advocacy groups are solidly focused on a range of hot-button issues, from the Orphan Drug Tax Credit ... Read more

October 25, 2018

Carbon Monoxide, Colder Weather Linked to Rise in AAV Frequency in Large Study from China

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The frequency of ANCA-associated vasculitis (AAV) appears to increase with exposure to carbon monoxide and colder climates, with patients more often diagnosed in winter months, a Chinese study reports. The disease ... Read more

October 23, 2018

FDA Expands Approval of Rituxan as Remission Maintenance Treatment for GPA and MPA Patients

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The U.S. Food and Drug Administration has approved a label update for Rituxan (rituximab) to include information for patients with granulomatosis with polyangiitis (GPA) and microscopic polyangiitis (MPA) who ... Read more

October 18, 2018

Pregnant Women with ANCA-associated Vasculitis More Prone to Complications, Review Shows

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Women who develop ANCA-associated vasculitis while pregnant are more likely to suffer maternal and fetal complications, according to a systematic literature review. To ensure the best possible outcome, investigators ... Read more

October 16, 2018

Levamisole-laced Cocaine Led to ANCA Vasculitis and Kidney Damage, Case Report Recounts

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A patient in New York was diagnosed with ANCA-associated vasculitis and compromised kidney function caused by levamisole-adulterated cocaine, which scientists consider to be a rare occurrence. The study, “Unusual ... Read more

October 15, 2018

Tailored Rituxan Regimen for ANCA Vasculitis Patients as Effective, Possibly Safer than Fixed-schedule Treatment, Expert Says

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An individually tailored treatment with Rituxan (rituximab) is as effective as the standard fixed-schedule regimen in preventing relapses over 28 months in ANCA-associated vasculitis (AAV) patients in remission. The ... Read more

October 11, 2018

Cocaine Abuse Causes Symptoms that Mimic AAV, Complicating Diagnosis, Case Report Shows

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Inhaling cocaine regularly can cause tissue and blood changes that may mimic those found in patients with ANCA-associated vasculitis (AAV), a case report shows. These findings suggest that in ... Read more

October 10, 2018October 9, 2018

Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments

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Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced to seven years in federal prison for securities and wire fraud while heading San Diego-based ... Read more

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